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The National Niemann-Pick Disease Foundation provides family support, educational programs, and research funding into all forms of Niemann-Pick Disease. This mailing list is provided as ...(more)

This email group has been established in the interest of all Chromosome 22 disorders. Families, teachers, and other professionals can meet here and discuss concerns, share ideas, give ...(more)

This is my son David Michael Wedgbury. David is 13yrs. old now. He was born with clogged tear ducts, and he also had a heriated belly button. I didn't discover that David had VCF w/q22 ...(more)

This list is created to bring together families and professionals to share information, stories and ideas about duplications of chromosome 15q. These duplications most commonly occur in ...(more)

A support group for those with TRPS, a rare skeletal dysplasia disorder. We offer information, friendship & understanding. Self-advocacy through education is encouraged. As List Owner, ...(more)

Keywords:Smith-Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among parents, ...(more)

A private community for those who have loved ones with this rare genetic syndrome. It is a syndrome based on chromosome 18.

Nederlandse mailinglist voor mensen met Factor V leiden of soortgelijke stollingsafwijking/problemen (apc resistentie, proteine s/c deficientie, factor II, antitrombine III, ...(more)

From Amy (adfdl): This group is for families with Hereditary Diffuse Gastric Cancer, their caregivers, and medical professionals working to understand, prevent, and treat the disease. I ...(more)