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craniosynostosis_endo
179 Members,
Archives:
Membership required
Group that allows free discussion about Endoscopic procedure for parents of children that have craniosynostosis. Frank discussion of all pros and cons as well as tips for surviving the ...( more)
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| 2 |
ahavenforparents
11 Members,
Archives:
Membership required
This group is for parents who have children with Craniosynostosis and or any syndrome related to it. It is a long, hard road that we face but helping each other and having other people ...( more)
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childrenwithcraniosynostosis
~~VISIT ***www.CAPPSkids. org*** for more information and additional support ( www.cappskids.org/board/ )!! ~~Has your child had craniosynostosis or recently been diagnosed? Is your ...(more)
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| 4 |
christiansagittalsupport
Support and information for families of children with Craniosynostosis of the sagittal suture from a Christian perspective. Information on the Spring Mediated Cranioplasty, Craniofacial ...( more)
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| 5 |
CranioMom
11 Members,
Archives:
Membership required
Do you have craniosynostosis or have a loved one with it? If so, this is the place to meet new friends who understand the issues and challenges you face daily. Carpenter, Apert, or ...( more)
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| 6 |
CAPPSKIDS
17 Members,
Archives:
Membership required
In 1999, the national non-profit organization Craniosynostosis And Parent Support, Inc. was established by a mother whose child had Craniosynostosis to offer support and information to ...( more)
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| 7 |
Neuro_Patology
< 5 Members,
Archives:
Moderators only
Consults about diagnose and treatment of Neurologic Patology
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| 8 |
beyondcranio
31 Members,
Archives:
Membership required
Craniosynostosis is a very divestating word to hear, their are many aspects of it. The initial shock of finding out your child has it, the discussion of major surgery, and then the ...( more)
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| 9 |
craniosynostosis-support
< 5 Members,
Archives:
Membership required
Hi and welcome to Craniosynostosis Support. The groups aim is to bring together affected individuals, their families, friends and associates for email support, discussion and research. ...( more)
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| 10 |
strongmom23
28 Members,
Archives:
Membership required
families that have had craniosynostosi in there life
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