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pierrerobin
697 Members,
Archives:
Membership required
Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with PRS. The purpose of our group is to share experiences with each other to ...( more)
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jawdistraction
324 Members,
Archives:
Membership required
Welcome to the Jaw Distraction/ Craniofacial Surgery Discussion Group! This group is for all whose lives have been affected by a craniofacial difference or anyone who has an interest in ...(more)
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crouzons
224 Members,
Archives:
Membership required
Welcome to the Crouzon Support Network! An online support group for individuals and families who are dealing with Crouzon Syndrome and other craniofacial anomalies. A place to share ...( more)
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cleftchat
466 Members,
Archives:
Membership required
For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment. We have a ...( more)
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cleftclub
352 Members,
Archives:
Membership required
CleftClub.com is for providing information and support for those dealing with cleft lip and/or palate, whether you were born with it, are parents of a cleft child, or are a relative or ...( more)
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anastasiakhramova
< 5 Members,
Archives:
Membership required
Velo Cardio Facial Syndrom is a very difficul syndrdome. It effects 1 out of 10 children in America. It's a very rare condition and doctors don't know that much about it yet because ...( more)
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muenke_syndrome
32 Members,
Archives:
Membership required
I am the mother of a child with Muenke syndrome, and have had difficulty finding other families who are dealing with this as well. I am hoping by putting this group up I can meet other ...( more)
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FND-CFND
39 Members,
Archives:
Membership required
Frontonasal Dysplasia, or FND, is a craniofacial condition that affects the way the eyes and nose grow together. It occurs in the first few weeks of pregnancy and can be the result of a ...( more)
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childrenwithfacialdeformities
104 Members,
Archives:
Membership required
I wanted to begin a message site for children. My son has microtia, a deformity of the ear, and I have had a hard time finding chat groups for children with facial deformities. Please ...( more)
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cleftfclubdebate
This groups is for the more heated discussions dealing with cleft lip and palate. For regular cleft support, please visit our main mailing list here
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